I don't recognise who I am any more
If you have recently been in hospital, especially as a result of a traumatic brain injury, or have been in intensive care, and feel you have changed so much since coming out that it's like you are a completely different person, then maybe this is for you.
If you are behaving differently, have preferences for things that are new, and you don't understand what is happening, then maybe this is for you.
If you have changes to your memory, your temper, your ability to concentrate, can't follow the flow of conversations, struggle to sequence things, have a different sense of proportion, have trouble planning things, have new impulses, have changes to how spontaneous you are, you might have Dysexecutive Syndrome, previously known as Frontal Lobe Syndrome.
The purpose of this site is to help you identify what is Dysexecutive Syndrome so you can decide for yourself if there is a possibility this is what has happened. If this helps you understand what is happening then it might help you, and those around you, cope. It also might help your healthcare team recognise your problem and open up doors to rehabilitation
A traumatic brain injury has lasting consequences, not all of which are readily understood by every member of healthcare teams. One of the consequences of a traumatic brain injury is a condition called Dysexecutive Syndrome.
Like all syndromes, Dysexecutive Syndrome is not one single problem but a collection of problems that at first sight may seem isolated, but in reality are linked by something common.
Dysexecutive Syndrome affects how the brain works on an every day level. It changes how people behave and how they experience life. Initially, especially when people don't realise it is affecting them, it feels like they have inherited a different personality. This can be very hard to recognise and adjust to, not only for the affected person, but close ones around them. To all those affected its like living with a stranger.
Although Dysexecutive Syndrome is very common, its diagnosis is hard to establish in some cases, and not all doctors see enough cases of Dysexecutive Syndrome to either recognise it, understand it, or know how to support those affected by a diagnosis. In some cases it is misdiagnosed completely and put down to depression.
If you have had a traumatic brain injury and are experiencing some or all of the following then it's possible you have Dysexecutive Syndrome and would be advised to have a conversation with your doctor